3/22/11

3/22/11: "Today was one year since I found out about Cases Diaphragmatic Hernia... Doc told me they weren't positive if it was or not, and 'don't look it up until it's confirmed, because it's scary' (of course I looked it up) had to wait 3 days till our appointment at Childrens. Longest 3 days of my life...we weren't going to find out the sex of the baby- but decided to the same day they confirmed it was CDH. We knew he'd be strong. We were right. <3 you Case!"

i posted this on my facebook page.
i can't believe it has been a year already. Rylan and I have learned so much this last year. a year ago it felt like the rest of my pregnancy was going to take For. EVer. after i learned of his CDH i still had 12 more weeks to go until i had him. Lots of stress tests to make sure he was okay near the end of those 12 weeks. being told that he may have a chromosome disorder..he may be blind, deaf, heart problems...may not even have enough lung tissue to survive.. no way to tell until he is born because in ultra sounds the intestines look the same as lung tissue does. and his intestines were in his chest. i'd always tell the ultrasound tech. that it was lung tissue. Lots of lung tissue.
i would always say he is fine. he is strong and healthy.

February 18, we went back to SanFrancisco for a CDH clinic. where they check him all out. discuss nutrition, do xrays. Looks like his right lung is Compensating. thats a good thing.

things so far are moving in the right direction. His Gortex patch Diaphragm hasn't torn yet, but it is inevitable that it will. he will be throwing up green and yellow, not wanting to eat a Thing. USCF told us as soon as we suspect, to take him to the ER. they will Xray and then if he is torn he will get a helicopter ride to SF. to be patched up again.

I never did think things wouldn't be ok. I never doubted UCSF's abilities. not for one second. i knew it would be hard and there would be sad moments, but for some reason i knew/know everything will be ok.